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Charlie Lakin 612-624-5005 lakin001@umn.edu Robert Doljanac 612-624-1832 dolja001@umn.edu Jinyong Huang Research and Training Center on Community Living, U of MN, Minneapolis http://rtc.umn.edu http://www.qualitymall.org/ http://rtc.umn.edu/nhis/ *4P,dz!"[!0+!0L\!0~!0!0!022% Key QuestionlTo what extent do access to and experiences with services for adults vary by Disability group (ID/DD vs FL only) Age (18-35 vs. 36 and older) Gender Once the following are considered Overall health status (excellent/very good) Race (white, black, other) Economic status (above or below poverty) In multivariate logistic regression analyses R2 ranged from 1% to 15%MZHZ"ZpZ-ZZMH"p-      e3&57 Outcomes Examined4'Pattern of ResultsMany differences By disability group (48 differences) By age (43) By gender (27) Including for control variables Economic status (33) Overall health status (31) Race (22)TZ@Z Z:Z@ :5(Disability Group Differences,pAdults with ID/DD were 2 to 14 times more likely to Receive supported employment services (4.90) Receive day activity center services (5.56) Used sheltered workshop services (14.42) Get help or supervision for ADLs (3.49) Get help or supervisor for IADLs (2.19) Need ongoing supervision to ensure safety (9.34) Have seen a speech therapist or pathologist (2.79) Use a personal care attendant (2.64) Used Center for Independent Living services (7.48) Receive social skills training (7.48) Than adults with functional limitations but not ID/DD They were 3.45 times less likely to be have stayed home alone for 2+ hours (3.45)B4PPP4,#r;."Transportation by Disability Group##,Adults with ID/DD were 2 to 14 times more likely to Have ridden in a social service van last week (8.32) Have used special bus, cab or van service (3.03) Have received transportation services in the past 12 months (4.68) Report an impairment or health problem that prevents the use of transportation (4.19) Have difficulty getting and using public transportation (2.23) Than adults with functional limitations but not ID/DD They were 4.76 times less likely to have driven a car in the last week. \4P>P~PP4>~</4Long-Term Care and Waiting Lists by Disability Group55(4Adults with ID/DD were 2 to 14 times more likely to Used Center for Independent Living services (7.48) Have lived in a board and care home (8.48) Have lived in an assisted living facility (4.45) Have lived in a convalescent home (2.31) Have lived in any long term care facility (2.90) Be waiting for long-term care facility or services (4.02) Be waiting for employment or day program services (3.75) Be waiting for case management services (4.63) Be waiting for community services or supports (2.59)(Table 10) Than adults with functional limitations but not ID/DDB4PP6P467*)Mental Health Services by Disability Type**$Adults with IDD were more than 2 times more likely to Have a court appointed guardian (9.81) Have a social worker (4.39) Have stayed overnight for MH services (2.42) Receive community mental health (3.69) Receive psychotropic medications (2.21) Have lived in a facility for persons with MR (40.45) Have lived in a facility for persons with MI (2.45) Than adults with functional limitations only They were also 56% more likely to be waiting for mental health services or counseling B6P(PP6(:-Age Related Differences7Older adults (36+ years) were 2 to 4 times more likely to Need help with ADLs (2.82) Have difficulty entering or leaving their home due to impairments (4.22) Have seen a physician in the last 12 months (3.03) Have used PCA services (4.21) Have an impairment or health problem that prevents the use of public transportation (4.68) Have stayed in a convalescent home (4.62) Have had a flu shot in 12 months (2.91) Older adults were more than 5 times more likely to Need help with IADLs (5.40) Have seen a visiting nurse (5.37) Have ever stayed in a nursing home (9.78) t:PbP3PhPP:b3h> 8U8+Age Related Differences2Younger adults (18-35 years) were more than twice as likely to Be in the labor market Receive supported employment, day training or transitional work training Have stayed home alone for more than two hours at a time Have stayed overnight for MH services Have received alcohol or drug abuse services Have ever lived in a facility for persons with mental illness Have driven a car or ridden public transportation in the last week Be waiting for employment or day program supports They were more than three times more likely to Be waiting for mental health services\?PP/P&P?/&9,Gender DifferencesJWomen were more than 50% more likely to Need help or supervision with IADLs See a general practitioner in the last 12 months Have ridden in a car in the last week Used special bus, cab or van services (where available) Be on a waiting list for a long-term care facility or services Need more help than they were getting with IADLs.(Z#Z(#,F6)Gender DifferencesMen were more than twice as likely to Be in the labor force Have seen a speech or language professional Have received services for alcohol or drug abuse&&s&s>1Disability Group Differences,5Age of acquisition of disability (Developmental period vs adulthood) People with FL only have fewer different functional limitations (% with 3+ is 21% for FL only vs 74% for IDD) There are many more adults with FL only (15 million vs 1.5 million) The types of functional limitations differ For FL only the most common were Independent living (62%) Economic self-sufficiency (45%) Mobility (30%) For ID/DD the most common were Economic self-sufficiency (88%) Learning (88%) Self-direction (50%) People with FL only are more like to be 65 years or older (46% vs. 8%)"P!PHPPEPGP"!HE  G>7jBM=0References and Resources, Available online at http://rtc.umn.edu/nhis/pubs.html Larson, S.A., Lakin, K.C., & Huang, J. (2003). Services Use by and Needs of Adults with Functional Limitations or ID/DD in the NHIS-D: Difference by Age, Gender and Disability. MR/DD Data Brief, 5 (2). Minneapolis: University of Minnesota, Research and Training Center on Community Living. Data Brief, Volume 6, No. 1: Gender, Age and Disability Differences in Functional Limitations for Non-Institutionalized Adults in the NHIS-D Data Brief, Volume 5, No. 1: Health Insurance Coverage and Health Care Experiences of Persons with Developmental Disabilities in the NHIS-D. Data Brief, Volume 4, Issue 1: Children with Disabilities: Social Roles and Family Impacts in the NHIS-D. Data Brief Volume 3, Issue 3: Functional Limitations of Adults in the U.S. Non-Institutionalized Population: NHIS-D Analysis. Data Brief Volume 3, Issue 2: Demographic Characteristics of Persons with MR/DD Living in Their Own Homes or With Family Members: NHIS-D Analysis Data Brief Volume 3, Issue 1: Characteristics of and Service Use by Persons with MR/DD Living in Their Own Homes or With Family Members: NHIS-D Analysis Data Brief Volume 2, Issue 1: Prevalence of Mental Retardation and/Developmental Disabilities: Analysis of the 1994/1995 NHIS-D. R7P0P( "!05?2/Appendix: Definitions and Prevalence Estimates00, @3-National Health Interview Survey 1994/1995 DS&Complex stratified nationally representative household probability sample Multi-stage personal interview Civilian, non-institutionalized population Sample 94 + 95 Core 218,646 Phase 1 202,560 Phase 2 32,788 Weighted analyses to account for sample design Used SUDAAN to estimate variancestJZLZZ1ZQZJL1QA41Identifying People with Intellectual Disabilities22, Reported having mental retardation ICD code of mental retardation as a cause of general activity limitations. Play (for children to age 5) School (for children 5-17 years) Work (adults ages 18-69) Other activities (all ages) Had an ICD code of mental retardation as primary cause of 24 different limitations. Had both a related condition and a learning disability or other functional learning limitations. Related conditions: autism, cerebral palsy, down syndrome, spina bifida, hydrocephalus, epilepsy + 24 other conditions\nZsZZxZnsxB52Identifying People with Developmental Disabilities33,People ages 5 and older who had functional limitations in 3 or more areas which involved  a lot of difficulty or the person was completely  unable to complete task occurred before age 22 and was expected to continue indefinitely. Functional limitations self-care receptive and expressive language learning mobility self-direction capacity for independent living economic self-sufficiency\PPPPPP People birth to 71 months who had a specific congenital or acquired condition consistently associated with DD in older children or adults (e.g., mental retardation, cerebral palsy, spina bifida, epilepsy, hydrocephalus) or a substantial delay in physical development, chewing, eating, toileting, expressive or receptive communication, understanding instructional materials, cognitive or mental development, participation in strenuous activity or mobility. Excludes children who had only a hearing, vision or speech impairment.PPVC63Identifying People with Functional Limitations Only44,Same definition as developmental disabilities except The person had a substantial limitation in one or more of the seven areas (as opposed to three or more in the DD definition) Any age of onset (not limited to those with limitations occurring prior to age 22) Includes Children 6 to 17 years with one or two functional limitations Adults with one or two functional limitations occurring at any age Adults with any number of limitations first occurring after age 21\5ZZ ZZ5 D7#1994/1995 U.S. Prevalence EstimatesNon-institutional population with ID/DD (N per 1,000) Birth to 5 years 939,617 (38.4) 6 to 17 years 1,452,359 (31.7) 18+ years 1,495,183 (7.9) Total 3,887,158 (14.9) All people with ID/DD 4,132,878 (15.8) (Including people living in nursing homes, group homes and other institutions) Functional limitations only 1 or 2 FL 12,224,149 (64.2) 3 or more FL 3,204,168 (16.8)~<'P?<(O?  ` ` ̙33` 333MMM` ff3333f` f` f` 3>?" dd@0|?" dd@   " @ ` n?" dd@   @@``PT $   @ ` ` p>>  (    6w "P w T Click to edit Master title style! !$  0w " w RClick to edit Master text styles Second level Third level Fourth level Fifth level!     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A___PPT10e.+D=' = @B +rx Q BK*W,l\20_avyˆh.3|~?ܓy*â DtOh+'0Q `h   MN Longitudinal Staff StudySherri Larsonl maria L8riMicrosoft PowerPoint St@ i؛C@ =@epGPg  R('& &&#TNPP@w2OMi & TNPP &&TNPP     'A x(xKʦ """)))UUUMMMBBB999|PP3f3333f333ff3fffff3f3f̙f3333f3333333333f3333333f3f33ff3f3f3f3333f3333333f3̙33333f333ff3ffffff3f33f3ff3f3f3ffff3fffffffff3fffffff3f̙ffff3ff333f3ff33fff33f3ff̙3f3f3333f333ff3fffff̙̙3̙f̙̙̙3f̙3f3f3333f333ff3fffff3f3f̙3ffffffffff!___wwwڲڸԲӲӲӲӲӲӬӲӲӬԲӲԲھٸڸٲӸӲӳӲӲӲͲͲӲͲӲٸӲڿڸٸٸԸٲӲӲӲͲӸӲӲӲӲӬͲӬӬӬԲٿٹӸӲӲӬӲԲͲӬͲٸٲӸԸӲӲӳӲӲӬӲӬӬӬӬӲٸٲӲӲӲͲͲ߹ٸڸٲӸӲӲӲڿٲӸӬٹӹٲٲӲӲӲӬݲٹٲӳӲӲݲݭݲӲӲӲӲӲͲͲͲͬӸٹڸԸԸӹӲӲԲڲӲݲݬٲӸӸӲӲӬݲٸٸڲӲӲӲݬͲݬݭӲӲٲԲӲӬݲͲͲͬͬٸٸٳӲӲӲӬӬӬͬͬͬӬԲӹӲӲӲӲӲӬӬӬӸӸٲӲӲͲӬͲͲͲݬݬӳӲӲԲӲͲӬͬͬݬٸٹӸӲӲӬͬӬάݬٲӲӳӲӲӬӬӬͬͬͬӹӸӲӲӲӬͬӬͬͲٹٲԲӲӬӲͲͲͲͬٸӲӲӲͲͲάͬͬͭӲӲӲͲӬӬͲͬӸӲӲӲӲӬӲͬͬͬͬӸӲӲӲͲͲͲӬӬͬӸڲӲӲӳӲӬӬͬǬٲӸӲӲӬӬӬӬӬͬͬӳӲӬӲӬͬͬӹٲӲӲӲӳӬͲͲͲͬӲӲӬӬӬͲͬͬӲӳӬӲӬͲӬͬͬԸӲԲӲͲͲӬͬͬӲӲӲӲӬӬӲͬͬͬӲӬͲͲӲӲͲӬӬͬӳӲӲӲӬӬӲͲӬӲͲͲͬӬͬͬӲӬӲӲӲӬӬӬͲͬӲͲͬͬͬͬӲӬӬӲͳӬͬӬͬͬӲͲӬӬͬͬβӳӬͲӬӬӬͬͬӲͲͲӬӬӬͬͬӲӬβͬӬͬӬӲӲӬͬͲͬͬάͲͲͲӬӬͬͬͬӬӬԬӬӬӬͬͲӬͲӬͬͬͬӬӬͬͬͬͬӬͲͲӬӬӬͬͲӬͲͬͬͬͬͬͬͬͬӬͲͬͬͬӬͬͬͬӲͬӬͬͬͬͬͬӬӬͬͬͬάͲͬͬͬͬͲͬͬͬݬͬͬͬͬͬͬͬͬͬӬͬǬͬͬͬͬͬͬͬǬݭͬͬͬͬͭάͲͳάǡͲͬӬӬ--&TNPP &՜.+,D՜.+,    vOn-screen ShowUniversity of Minnesotaj ArialTimes New RomanPT LightBlue018APAge, Gender and Disability Type Differences in Service Use and Needs for Adults Key Question57 Outcomes ExaminedPattern of ResultsDisability Group Differences#Transportation by Disability Group5Long-Term Care and Waiting Lists by Disability Group*Mental Health Services by Disability TypeAge Related DifferencesAge Related DifferencesGender DifferencesGender DifferencesDisability Group DifferencesReferences and Resources0Appendix: Definitions and Prevalence Estimates.National Health Interview Survey 1994/1995 DS2Identifying People with Intellectual Disabilities3Identifying People with Developmental Disabilities4Identifying People with Functional Limitations Only$1994/1995 U.S. Prevalence Estimates  Fonts UsedDesign Template Slide Titles@ _PID_HLINKS_AdHocReviewCycleID_EmailSubject _AuthorEmail_AuthorEmailDisplayNameA*http://rtc.umn.edu/http://www.qualitymall.org/http://rtc.umn.edu/nhis/mailto:lakin001@umn.edumailto:dolja001@umn.edumailto:larso072@umn.edu"http://rtc.umn.edu/nhis/pubs.html8AAMR Presentation Request Formlarso072@umn.edu Reslarson_ mariamaria  !"#$%&'()*+,-./0123456789:;<=>?@ABCDEFGHIJKLMNOPQRSTUVWXYZ[\]^_`abdefghijklmnopqrstuvwxyz{|}~Root EntrydO)PictureshCurrent UserSummaryInformation(QPowerPoint Document(cDDocumentSummaryInformation8