RECOVERING
THE ETHICS OF CARE -
Harry Moody, PhD, Speaker
Harry Moody is currently Director
of Academic Affairs for AARP in Washington, DC.
He also serves
as Senior Associate with the International Longevity
Center – USA and Senior Fellow of Civic
Ventures
10:00 - 10:25 am
Break
10:25 - Noon
WORKSHOPS
Practical Advice for Support at End of Life
Speakers: Betsy Johnson, Medical Ethicist and Consultant
to the Massachusetts Department of Mental Retardation
and Candace Cassin, Director of Learning and Development
for the Central/West Region of the Massachusetts
Department of Mental Retardation
Successful Adaptations for Continued Community Living
for People with Intellectual Disabilities Affected
by Dementia
Speaker: Matthew P. Janicki,
Ph.D., Research Associate
Professor and Director for Technical Assistance, RRTC
on Aging with Intellectual/Developmental Disabilities,
Department of Disability and Human Development, University
of Illinois at Chicago
Innovative Interventions to Support Older Families
Enhancing the Ability of Families to Provide and Manage
a Support System for their Relative with a Disability
Speaker: Joe Caldwell, Project Coordinator, RRTC on
Aging with Developmental Disabilities, Department of
Disability and Human Development, University of Illinois
at Chicago
Family Financed Housing: A Creative Approach to the
Shortage of Residential Services
Speaker: Alan Factor, Ph.D., Associate Director for
Training and Dissemination, RRTC on Aging with Developmental
Disabilities, Department of Disability and Human Development,
University of Illinois at Chicago
Family Support and Aging: Involvement of Parents,
Siblings, and Adults with Developmental Disabilities
in Future Planning
Speaker: Tamar Heller, PhD, Professor and Head, Department
of Disability and Human Development, University of
Illinois at Chicago
Noon - 1:15 pm
Lunch on your own
1:15 - 2:15 pm
PLENARY SESSION
GRIEF and LOSS
IN PERSONS WITH INTELLECTUAL DISABILITIES, Kenneth
J. Doka, PhD, Speaker
Dr. Kenneth J. Doka is a Professor of Gerontology
at the Graduate School of The College of New Rochelle
and Senior Consultant to the Hospice Foundation
of
America as well as an ordained Lutheran minister
2:15 - 3:15 pm
PLENARY SESSION
LEGAL and ETHICAL CHALLENGES -ROBERT
DINERSTEIN, JD and GARY STEIN, JD, MSW
Bob Dinerstein is Professor of Law at American University,
Washington, DC and Gary Stein is the Executive Director
of NJ Health Decisions, Vernon, NJ
3:15 - 3:40 pm
Break
3:40 - 5:15 pm
WORKSHOPS
End of Life Care Initiatives: Available Resources
and Training
Speakers: Angela King, MSW, Volunteers of America,
Alexandria, VA, Gary Stein, JD, MSW, Executive Director,
New Jersey Health Decisions, Vernon, NJ, Liz
Craig, MPA, Office of Disability, National Hospice & Palliative
Care Organization, Alexandria, VA
Palliative Care: Principles and Practice
Speaker: C. Michael Henderson, MD is a physician Board
Certified in Geriatrics, Internal Medicine and Neurodevelopmental
Disabilities who was the medical director of a rural
home hospice agency and is now an Assistant Professor,
University of Rochester School of Medicine
Supporting Family Caregivers of Individuals with Intellectual/Developmental
Disabilities: Results of a 3-Year Study
Speakers: DiAnn Baxley, Director, Training and Technical
Assistance Center on Intellectual Disabilities, University
at Albany; Anna Zendell, Doctoral Assistant, Center
on Intellectual Disabilities, University at Albany;
and Rick Greene, Aging Program Specialist, US Administration
on Aging
FRIDAY,
DECEMBER 2, 2005
8:30 - 10:00 am
WORKSHOPS
Assistive Technology and End of Life Care: A Nevada
UCED and Circle-of-Life Hospice Partnership
Speakers: Candace Ganz, Assistant Director, Nevada
University Center on Excellence in Disabilities, Mike
Girard, CEO, Circle of Life Hospice, Deb
Girard, Administrator,
Circle of Life Hospice, Joseph Galata, Executive Director,
Circle of Life Foundation
Persistent Vegetative State and Related Conditions
Speaker: David L. Coulter, MD,, Associate Professor
of Neurology, Harvard Medical School and staff of the
Neurology Department, Children’s Hospital, Boston
High Quality
Health Care – Achieving
the Dream For Older Individuals with
Intellectual Disabilities
North Carolina Primary Healthcare Access For Adults
with Developmental Disabilities
Speaker: Kathryn Moss, Ph.D., Research Fellow and Head,
Disability Research Section, Cecil G. Sheps Center
for Health Services Research, UNC at Chapel Hill
Improved
Access & Healthcare
Outcomes Through Specialized Health Care Provider
Training
Speaker: Irene D. Jurczyk, Director, CME, Dental and
Allied Health Education, Mountain Area Health Education
Center, Asheville, NC
Assuring Quality Care and Improved Outcomes of Acute
Care Stays Through Person Centered Partnerships
Speaker: Genny Pugh, MA, NHA, Director, Black Mountain Center, Black Mountain,
NC
10:00 - 10:25 am
Break
10:25 - Noon
WORKSHOPS
Communication of Healthcare and End of life Wishes:
People Planning
Ahead
Speaker: Leigh Ann C. Kingsbury, MPA, Gerontologist,
InLeadS Consulting and Training, Wilmington, NC, and
lead consultant on an End of Life project in Washington,
DC
Standards of Care for Grief Support
Speaker: Jeffrey Kauffman, M.A.,M.S.S., L.C.S.W., Bryn
Mawr College, Graduate School of Social Work and
Social Research
Federal Initiatives Supporting Older Adults with Developmental
Disabilities and Their Families
Speakers: Greg Case, Aging Services Specialist, Administration
on Aging, Rick Greene, Aging Services Specialist, Administration
on Aging, Patricia Morrissey, PhD, Commissioner, Administration
on Developmental Disabilities, Kim Musheno, Director
of Legislative Affairs, Association of University Centers
on Disabilities, Margaret Nygren, EdD, Technical Assistance
Director, Association of University Centers on Disabilities
Noon - 1:00
CLOSING PLENARY
DEATH, SELF DETERMINATION, and COMMUNITY BUILDING:
Antithesis or Opportunity?
WILLIAM C. GAVENTA, Jr.,
Speaker
Bill Gaventa serves as Director of Community and Congregational
Supports at the Elizabeth M. Boggs Center on Developmental
Disabilities, and Associate Professor, Robert Wood
Johnson Medical School. The Boggs Center is located
in New Brunswick, New Jersey and is part of the Robert
Wood Johnson Medical School of the University of Medicine
and Dentistry of New Jersey.
