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Home ownership and consumer controlled housing refer to a place to really call a home, that belongs to an individual, and for which the individual is responsible. Unfortunately, for individuals with disabilities, "home" often refers to a program with numerous regulations, paid staff, and restrictions. Control of one's housing and ownership of real estate is power, not only within the individual's immediate community, but within the larger American society.
A. There are physical, economic, social, and institutional barriers, which include:
1. Lack of personal financial resources;
2. Systemic dependence on programs that limit personal choices;
3. Limited capacity to create innovative housing and support options;
4. Limited involvement of people with disabilities in these efforts; and
5. Limited perspective of the community to envision home ownership.
1. Assist builders/developers in identifying individuals with special
housing needs, the best strategies for meeting those needs, and the
most effective approaches to marketing the housing to individuals with
special housing needs.
2. Assess amount of income available for rent or a mortgage.
3. Determine level of support services required.
4. Determine architectural modifications required.
5. Assess the type of housing that best meets the needs of the individual.
6. Look at other housing initiatives that are meeting the needs of people
with disabilities and learn from their experiences.
7. If there are support needs not currently being met, determine how to meet
those needs.
8. If the house will be shared with others, decide on how lo choose house
mates.
9. Look into whether or not a homestead exemption or a tax break is available.
10. Consider maintenance issues.
11. If staff will be in the house, consider issues related to their hiring,
training, and firing.
12. Determine the type of legal structure to be used to develop this housing
(e.g., limited or general partnerships, corporations, housing cooperatives).
13. Establish linkages with any person, business, advocacy organization that
may be helpful in developing the housing.
A.:
1. Habitat for Humanity (HFH) - helps individuals learn about the
responsibility of owning a home, helps individuals build the home through
a process known as "sweat equity", and keeps home ownership
affordable through paying for only the actual cost of the home and
the use of small monthly payments over 7 to 10 years (donation of supplies
and labor helps keep costs down).
2. Use of Home and Community Based Waiver Services to keep individuals at
home and out of residential programs.
3. Development of community condominium units (please see Specialized Housing
Inc., under the Resource section).
4. Housing Cooperatives - a group of people organized for the purpose of
owning, building, or rehabilitating housing for its members.
5. Single family dwellings.
6. Duplexes and other multiple dwellings.
1. Tenant Owned - individuals with disabilities own their homes.
2. Parent Owned - parent buys the home for the individual, but individual
controls other aspects of the home (e.g., maintenance, house mates).
3. Corporation Owned - parents and others set up corporation to purchase,
own, and maintain housing.
4. Partnerships - parents combine resources with other parents to buy a house.
5. Shared Equity - individual makes a purchase with another and gradually
buys out the other person.
6. Trust Owned - ownership assigned to a "living trust", set up
by parents.
A.:Federal sources:
State/Local Sources:
Individuals with disabilities are encouraged to own or rent the property where they live. Owning a home or controlling the lease empowers a person to make critical decisions about where and with whom one lives. The level and intensity of supports to make home ownership a reality must be flexible enough to vary with the changing needs and life circumstances of the individual.
Support providers in housing controlled by individuals with disabilities must know, understand, and respect the values, lifestyles, preferences, and expectations of the person receiving services, even when these are different from their own. Therefore, AAMR:
1. Institute on Community Integration, (1990). Feature issue on consumer controlled
housing. IMPACT, 3(1) 612-624-4848.
2. Capabilities Unlimited, (1997). Feature issue on housing. Community Advocacy
Press, 2(1) 800-871-2181.
3. O'Conner, S., Racino, J., (1989). New directions in housing, for people
with severe disabilities: A collection of resource materials. Syracuse, NY
Center on Human Policy. 315 443-3851.
1. Habitat for Humanity International, 121 Habitat Street, Americus, Georgia,
31709-3498, (912) 924-6935 ext. 304, (912) 924-6541(Fax).
2. Specialized Housing, Inc., 12 Lincoln Road, Brookline, MA 02146.
3. Hammer Residence, 1909 E. Wayzata Blvd., Wayzata, MN 55391.
4. Center for Community Change through Housing and Support at Trinity College
of Vermont, 208 Colchester Avenue, Burlington, VT, 05401-6110. (802) 658-0000,
(802) 863-6110 (Fax).
5. National Home of Your Own Alliance, University of New Hampshire, Institute
on Disability/UAP. 7 Leavitt Lane, Suite 101, Durham, NH 03824-3522, 800-220-8770.
(NOTE: For more information on the Home of Your Own Initiative and Alliance. please see the AAMR Fact Sheet on that topic).
Last Updated: February 11, 2005 1:22 pm