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This phrase refers to an entire family of approaches to organizing and guiding individual and community change in collaboration with individuals with disabilities, their families, and their friends. PCP requires important investments in order to build both personal and community support.
This phrase refers to principles which if followed lead to partnership and collaboration between parents and professionals to ensure the best possible supports and services for a child with a disability and for the child's entire family.
1. The person who is at the focus of the planning, and those who
love the person, are the primary authorities on the person's life
direction.
2. The primary purpose of PCP is to learn through shared action (i.e.,
the process is more than producing paperwork, it is about taking action
to reach goals) and reflection/evaluation of that action.
3. PCP aims to change common patterns of community life (e.g., segregation
and congregation of people with disabilities, devaluing stereotypes, inappropriately
low expectations, denial of opportunity).
4. PCP requires collaborative action and fundamentally challenges practices
that separate people and perpetuate controlling relationships.
5. Respect for the dignity and completeness of the focus person.
6. PCP calls for sustained search for the effective ways to deal with difficult
barriers and conflicting demands.
7. Promotes and values accurate individual services and supports, and clarifies
individual interests and needs.
8. Shaping services to support a person's vision of a valued lifestyle.
9. Facilitates change in services to be more responsive to, the interests
of people.
10. Search for capacities.
11. Organize efforts in the community to include person, family, and direct
support professionals.
12. Focus on quality of life and emphasize dreams, desired outcomes, and
meaningful experiences.
1. Incorporate into policy and practice the recognition that the
family is the constant in a child's life, while the service system
and support persons fluctuate.
2. Strive for family and professional collaboration in all settings (home,
community, hospital, school), especially in the areas of care giving, program
development, program implementation, program evaluation, program evolution,
and policy formulation.
3. Exchange complete and unbiased information between families and professionals
in supportive manner at all times.
4. Incorporate into policy and practice the recognition and honoring of
cultural diversity, strengths, and individuality within and across all
families: including, ethnic, racial, spiritual, social, economic, educational,
and geographic diversity.
5. Recognize and respect different methods of coping.
6. Implement comprehensive policies and programs that provide developmental,
educational, emotional, environmental, and financial supports which meet
the diverse needs of families.
7. Encourage family-to-family support and networking.
8. Ensure that all service and support systems for children with disabilities
and their families are flexible, accessible, and comprehensive in responding
to diverse family identified needs.
9. Appreciate families as families and children as children, recognizing
that they possess a wide range of strengths, concerns, emotions, and aspirations
beyond their need for specialized services and supports.
The AAMR has no official position on person or family centered planning.
1. Mount. B. (1992). Person centered planning finding directions
for change using personal futures planning. New York, NY: Graphic
Futures.
2. Mount, B. (1992). Personal futures planning: promises and precautions.
New York, NY: Graphic Futures.
3. Mount, B., Darcharme, G., & Beeman, P. ( 1991). Person centered
development: A journey learning to listen to people with disabilities.
New York, NY: Graphic Futures.
4. O'Brien, J., & Lovett, H. (1992). Finding a way toward everyday
lives: The contribution of person centered planning. Harrisburg, PA: Pennsylvania
Office of Mental Retardation.
5. Shelton, T.L., &; Stepanek, J.S. (1994). Family centered care for
children needing specialized health and developmental services. Bethesda,
MD: Association for the Care of Children's Health.
6. Smull, M. (1991). Supporting people with severe reputations in the community:
A handbook for trainers. Baltimore, MD: University of Maryland.
1. Virginia Institute for Developmental Disabilities, Virginia Commonwealth
University, 301 West Franklin Street, #1514, P.O. Box 843020, Richmond,
VA, 23284-3020. Point of
contact: Anne Malatchi, (804) 828-8593, (804) 828-0042.
2. Inclusion Press, 24 Thome Cresant, Toronto, Ontario, Canada, M6H 2S5,
416-658-5363 (T& F). Points of contact: Jack Pearpoint & Dr. Marsha
Forest, creators of PATH and MAPS. Inclusion Press publishes a great deal
of material on PATH, MAPS, and Circles of Friends.
3. Dr. Beth Mount, Graphic Futures, Inc., 25 West 81st Street, 16-B, New
York, NY 10024, (212) 362-9492.
4. Rehabilitation Research and Training Center on Supported Employment,
Virginia Commonwealth University, 1314 West Main Street, Richmond, VA,
23220. (804) 828-1851. Fax: (804) 828-2193.
5. Communitas, Inc., P.O. Box 374, Manchester, CT, 06040. (202) 645-6976.
Last Updated: March 23, 2005 1:46 PM