| List of AAMR Reading Room Documents |
|
2003 AAMR Presidential Address and Awards Program PDF, 16 pages
|
|
Contains a list of leaders honored at the AAMR 2003 Annual Meeting in Chicago as well as the presidential address by Ruth A. Luckasson, J.D.
|
Type document: PDF
|
|
AAMR Among Top Ten Best Health Charities in the U.S. : November 2002
|
|
The Physicians Committee for Responsible Medicine (PCRM), a health advocacy group based in Washington, DC, has selected AAMR for its "Top Ten Best Health Charities" list. "Charities were chosen for the excellence of their service programs and also for their commitment to education ...
|
Type document: [Web article]
|
|
AAMR Applauds U.S. Supreme Court Decision to Ban Execution of Persons with Mental Retardation : an AAMR statement
by AAMR staff
|
|
AAMR F.Y.I. asked members of the disability community for their reaction on the historic U.S. Supreme Court ruling of June 2002 banning the execution of persons with mental retardation.
|
Type document: [PDF 8 KB]
|
|
AAMR Supports the New Direct Support Professional Recognition Resolution
by AAMR
|
|
Announced by Congresswoman Lois Capps (D-Calif) and Congressman Pete Sessions (R-Texas) along with the American Network of Community Options and Resources (ANCOR) .
Click here to read the official resolution.
|
Type document: Web
|
|
Abuse of People with Learning Disabilities: Policy, Practice and Education Implications in Wales 2005, 4 pages
by Ruth Northway et al.
|
|
A study conducted by the University of Glamorgan looks at the extent to which best practices were evident in preventing abuse of people with intellectual disabilities.
|
Type document: PDF [110 KB]
|
|
Access to specialty medical care for children with mental retardation, autism, and other special health care needs October 2003
By Marty Wyngaarden Krauss et al.,
|
|
Results from a national survey of 2,220 families of children with special health care needs in 20 states, published in the October 2003 issue of the journal Mental Retardation. Over a third of the children with autism, over a fifth with mental retardation, and over a fifth with other types of special health care needs had problems obtaining needed care from specialty doctors. The most common problems included getting referrals and finding providers with appropriate training
|
Type document: [PDF 150 MB]
|
|
Aging and Developmental Disabilities March 2004
by Marsha Seltzer
|
|
Introduction to the special issue of the American Journal on Mental Retardation on Aging and Developmental Disabilities: Life Course Trajectories. The special issue consists of 9 articles by more than 40 experts and covers a broad range of issues, including Down Syndrome and dementia.
|
Type document: [PDF 66KB]
|
|
Bengt Nirje - Memoriam
May 2006, HTML
|
|
Bengt Nirje passed away at the age of 81 and the field has lost a passionate advocate for persons with intellectual disabilities. In Memoriam by the president of AAMR, Valerie J. Bradley.
|
Type document: WEB
|
|
Cell Phone Use by Adults with Intellectual Disabilities
By Diane Nelson Bryen et al.,
|
|
Although cell phone use has grown dramatically, there is a gap in cell phone access between people with disabilities and the general public. Only 28% of people with intellectual disabilities use cell phones. Article published in the February 2007 issue of the journal Intellectual and Developmental Disabilities (formerly Mental Retardation).
|
Type document: [PDF]
|
|
Changing Patterns in Size of Residential Settings for Persons With Intellectual and Developmental Disability, 1977-2005
By K. Charlie Lakin, Robert Prouty, and Kathryn Coucouvanis, 4 pages,
|
|
The latest numbers on persons with intellectual disabilities living in residential settings. Taken from the August 2006 issue of Mental Retardation and featured in the September 2006 issue of AAMR F.Y.I. newsletter.
|
Type document: [PDF]
|
|
City of Colorado Springs adopts the Supports Intensity Scale April 2004, HTML
By AAMR staff
|
|
Interview with Dr. Stephen Hall, Executive Director of The Resource Exchange Inc., Colorado Springs, CO,about the significance of the move towards adopting the Supports Intensity Scale as the city's official instrument to determine individual support needs for persons with developmental disabilities.
|
Type document: html
|
|
Closing the Gap: A National Blueprint for Improving the Lives of people with Mental Retardation , a report from the Surgeon General
by the Surgeon General of the United States
|
|
This report summarizes the results of a conference in December 2001. It emphasized listening to the dedicated members of the MR/DD community to better understand and enact significant changes to improve the health of this community. It sets forth an agenda for as well as listing core values and six key goals and actions steps required.
|
Type document: [PDF 1.1 MB]
|
|
Consensus Statement on Methylmercury and Public Health March 2004, 4 pages, PDF
|
|
Organizations representing medical and public health professionals, women, and advocates of children and families wrote this consensus statement to voice concern on exposure to mercury in the environment. AAMR is a participant in this initiative.
|
Type document: PDF [132 KB]
|
|
Consortium of Citizens with Disabilities Opposes President Bush's Attack on Persons with Disabilities
|
|
The CCD is strongly opposed to President Bush’s recently proposed Medicaid reforms because they would eliminate the longstanding guarantee that all Medicaid beneficiaries in a state have access to a comprehensive array of services. The services and supports that beneficiaries currently receive
— including children and adults with disabilities — are based on what they need. For their health and well-being,
these services are not optional. These supports and services enable children and adults with
disabilities to live in their own homes and communities.
|
Type document: [PDF 9 KB]
|
|
Constructing an Autistic Identity: AS Voices Online
By Charlotte Bronlow and Lindsay O’Dell, November 2006, 7 pages,
|
|
An article from the October 2006 issue of the journal Mental Retardation talks about how online discussion groups are helping people with autism find a voice and identity for themselves.
|
Type document: [PDF]
|
|
Death Penalty : a policy statement
by AAMR
|
|
Frequently Asked Questions regarding the death penalty and persons with mental retardation
|
Type document: [Web article]
|
|
Dementia Documents Aging
|
|
Several documents in PDF format addressing the issues of aging and dementia.
|
Type document: html, PDFs
|
|
Early Intervention : a position statement
by AAMR and The Arc boards
|
|
All quality early intervention supports and services must be available, affordable, appropriate, accountable, and accessible for all children with developmental delays as well as those with already-identified mental retardation and related developmental disabilities to maximize their ...
|
Type document: [Web article]
|
|
Easy-to-read format: Abuse of People with Learning Disabilities: Policy, Practice and Education Implications in Wales 2005, 4 pages
by Ruth Northway et al.
|
|
A study conducted by the University of Glamorgan looks at the extent to which best practices were evident in preventing abuse of people with intellectual disabilities.
|
Type document: PDF 110 KB]
|
|
Education : a policy statement
by AAMR
|
|
A Free and Appropriate Public Education (FAPE) must be provided in inclusive settings with peers of the same age and include individualized supports to all students with mental retardation and related developmental disabilities to prepare them to participate in our democratic society.
|
Type document: [Web article]
|
|
Employment : a position statement
by The Arc and AAMR boards
|
|
People with mental retardation and related developmental disabilities can be competitively employed in their communities. They should be supported to make informed choices about their work and careers and have the resources to seek, obtain, and be successful ...
|
Type document: [Web article]
|
|
Evaluation of a Decision-Making Curriculum Designed to Empower Women With Mental Retardation to Resist Abuse May 2005, 12 pages, PDF
By Ishita Khemka et al
|
|
Article published in the May 2005 issue of the American Journal on Mental Retardation on how training helps women with mental retardation become effective decision makers.
|
Type document: PDF [155 KB]
|
|
Federal Income Payments and Mental Retardation: The Political and Economic Context December 2003, 14 pages, PDF
By Susan L. Parish
|
|
Article from the December 2003 issue of the journal Mental Retardation. High poverty rates, low employment, and lack of residential services make federal income transfers such as Supplemental Security Income (SSI) and Disability Insurance (DI) an essential source of supports for persons with mental retardation. This makes this special population particularly vulnerable to the vagaries of changing public policies, which over the past two decades have included extensive changes in the benefit levels and eligibility criteria of SSI and DI in addition to welfare reform. Well-known disability researcher Susan L. Parish discusses this issue in this article.
|
Type document: PDF [165KB]
|
|
Final Report, Usage of the Term "Mental Retardation:" Language, Image and Public Education
by AAMR staff
|
|
This report is an in-depth study related to the past and current use of the term "mental retardation" in the context of government programs. It provides a research bibliography, five research summaries on relevant questions, and five sets of notes on selected related topics.
|
Type document: Web
|
|
First, Do No Harm-An Argument Against Mandatory High-Stakes Testing for Students with Intellectual Disabilities August 2005, 7 pages, PDF
by Leslie Johnson
|
|
A special education teacher speaks out against mandatory high-stakes testing for students with intellectual disabilities in the August 2005 issue of the journal Mental Retardation.
|
Type document: PDF [35KB]
|
|
Guaging the Use of HCBS Support Waivers for People with Intellectual and Developmental Disabilities
Gary Smith, John Agosta, Jon Fortune
|
|
A study of Supports Waivers by the Human Services Research Institute found that 17 states with Supports Waivers in 2006 served 27.6% of all their HCBS recipients in Supports Waiver programs with 9.3% of their HCBS expenditures.
|
Type document: pdf
|
|
Guidelines for Interviewing People with Disabilities: Supports Intensity Scale January 2005, 15 pages, PDF
Marc J. Tasse et al.
|
|
Guidelines for Interviewing People with Disabilities: Supports Intensity Scale helps professionals understand how to best conduct interviews with people with disabilities and self-advocates in order to make the supports planning process inclusive and comprehensive.
|
Type document: PDF 125 KB]
|
|
HCBS Recipients are Increasingly Likely to Live with Parents or Other Relatives
K. Charles Larkin, Robert Prouty, Kathryn Coucouvanis
|
|
A study published in the October issue of the journal Intellectual and Developmental Disabilities showing that the number of people with intellectual disability receiving Medicaid Home and Community Based Services while living with family members is an estimated 224,264 individuals as of June 30, 2006, 17 times higher than in June 1999.
|
Type document: pdf
|
|
HIV/AIDS and Disability: A Global Survey
May 2003, PDF
|
|
Information on a global survey on HIV/AIDS and disability conducted by the Office of the Advisor on Disability and Development and The Global HIV/AIDS Program of the World Bank in conjunction with the Yale University School of Public Health. "It is commonly assumed that disabled individuals are not at risk. They are incorrectly thought to be sexually inactive, unlikely to use drugs, and at less risk for violence or rape than their non-disabled peers. Yet a growing body of research indicates that they are actually at increased risk for every known risk factor for HIV/AIDS," says Dr. Nora Groce of the Yale University School of Public Health in The Lancet. Dr. Groce is one of the principal investigators in the survey.
|
Type document: PDF
|
|
Home of Your Own Initiative : a fact sheet
by AAMR
|
|
The home of your own initiative is a grass roots initiative to help people with developmental (and other) disabilities own or control their own housing. It can include personalized support. This document explains its purpose, structure and future.
|
Type document: [Web article]
|
|
How Research Advances Will Affect People With Developmental Disabilities in the 21st Century
By Duane Alexander, MD July 2001
|
|
Dr. Alexander presents research results and the accompanying health benefits of genetic research to date as well as what discoveries in genetics may be forthcoming in this decade.
|
Type document: [PDF 400KB]
|
|
Human Rights : a fact sheet
by Jean E. Tuller
|
|
Typically, when people speak of exercising their rights, they are referring to those fundamental rights that are specifically guaranteed by the U. S. Constitution and each state's constitution. But, "human rights" also often refers to the basic respect and dignity that should be afforded ...
|
Type document: [Web article]
|
|
In Favor of a Name Change
by Steve Warren, Ph.D., 2002, HTML
|
|
Position statement on why the association should change its name to the American Association on Intellectual Disabilities.
|
Type document: Web article
|
|
In Opposition to a Name Change
by Richard Garnett, Ph.D., 2002, HTML
|
|
Position statement on why the association should retain its current name -- the American Association on Mental Retardation.
|
Type document: Web article
|
|
Integrating Supports in Assessment and Planning October 2002, PDF
By Dr. James R. Thompson et al., October 2002, PDF
|
|
This article appeared in the October 2002 (Vol. 40, No. 5: 390-405) issue of the journal Mental Retardation and describes a systematic approach to evaluating support needs of persons with mental retardation. The authors also discuss the Supports Intensity Scale (SIS), a new instrument developed to measure the level of supports required by an individual. SIS will be published by AAMR in Fall 2003.
|
Type document: PDF [252 KB]
|
|
Interrater Reliability of the Supports Intensity Scale (SIS)
James R. Thompson, et al
|
|
Article published in the American Journal on Mental Retardation on the revised interrater reliability of the Supports Intensity Scale assessment tool.
|
Type document: pdf
|
|
Interview with Dr. Len Abbeduto New Editor of AJMR
Dr. Len Abbeduto
|
|
Dr. Len Abbeduto takes on editorship of the American Journal on Mental Retardation from January 2008. In this interview, Dr. Abbeduto talks about his vision for this premier journal in behavioral sciences.
|
Type document: html
|
|
Interview with Dr. Margaret Giannini, Director of new Office on Disability at the U.S. Dept. of Health and Human Services : Interview in AAMR F.Y.I., December 2002
by AAMR
|
|
Appointed Director of the new Office of Disability at the Dept. of Health and Human Services last fall, Dr. Giannini talks with AAMR F.Y.I. on the goals of her new office.
|
Type document: [Web article]
|
|
Interview with Dr. Michael Wehmeyer on assistive technology and mental retardation in 2002 : Interview in AAMR F.Y.I., March 2003
by AAMR
|
|
Dr. Wehmeyer, faculty at the University of Kansas and well-known for his research on the use of technology by persons with intellectual disabilities, gives AAMR F.Y.I. an overview of what made it big in assistive technology in 2002.
|
Type document: [PDF 12KB]
|
|
Interview with Marc Tasse, co-author of the 10th edition of Mental Retardation: Definition, Classification, and Systems of Support : an interview
by AAMR staff
|
|
Co-author of the latest mental retardation definition manual by AAMR, Dr. Marc Tassé talks about the response the 10th edition has received since its launch in June 2002.
|
Type document: [PDF 350 KB]
|
|
Introduction to the Special Issue on Aging: Family and Service System Supports September 2004, 3 pages
by Tamar Heller
|
|
Introduction by guest editor Tamar Heller on the impact of aging on families caregivers--the focus of a special issue of the American Journal on Mental Retardation.
|
Type document: [PDF 135 KB]
|
|
Leadership & Self-Advocacy : a fact sheet
Tia Nelis and Esther Lee PecLerson, Capabilities Unlimited, Inc.
|
|
Leadership is when a person learns the skills they need to run a group or be a part of a board or committee. It is also speaking up for yourself and helping each other learn how you can work together as a TEAM (Together Everyone Achieves More).
|
Type document: [Web article]
|
|
Legal and Volunteer Advocates
by Robert Perske
|
|
In 1976, the same year the U.S. Supreme Court reinstated the death penalty, Jerome Bowden, a defendant with an IQ of 65 was sentenced to death in the murder of Kathryn Stryker in Columbus, Georgia. Before, most of us ignored these situations, but we ...
|
Type document: [Web article]
|
|
Legal and Volunteer Advocates at Work Article for AAMR F.Y.I. September 2002
by AAMR staff
|
|
Soon after the U.S. Supreme Court ruling to ban execution of persons with mental retardation in June 2002, we asked noted disability advocate Robert Perske to share his thoughts on "what's next" from an advocacy perspective.
|
Type document: [Web article]
|
|
Leisure : fact sheet
Dr. Barbara A. Hawkins
|
|
Leisure can be defined as available free choice time and those individually selected activities that characteristically are not related to work or other obligatory forms of activity, and which are expected to promote feelings of pleasure, affiliation, happiness, spontaneity, fantasy or imagination, fulfillment, creativity, self-expression, and self- development. Leisure is a major domain of life activity and is essential for lifelong development and personal well-being.
|
Type document: [Web article]
|
|
McCarver v. North Carolina legal brief
|
|
Should people with mental retardation receive the death penalty? Under what circumstances, if any? Read the legal brief from the McCarver v. North Carolina case.
|
Type document: [PDF48 KB]
|
|
Medical Board of California v. Michael J. Hason, Amicus Brief to the U.S. Supreme Court
|
|
For far too long, States have systematically subjected Americans with a broad range of physical or mental disabilities to deplorable and unconstitutional treatment – including deprivations of their most fundamental constitutional rights. When Congress enacted Title II of the
ADA, there was ample evidence that States were
unconstitutionally excluding people with disabilities from
voting and from accessing our judicial system, prohibiting
them from marrying and raising families, warehousing them
in institutions with deplorable conditions, and otherwise
systematically, irrationally, and intentionally depriving them
of the rights guaranteed by the Fourteenth Amendment.
Unfortunately, regular instances of such unconstitutional
State behavior persist even today.
|
Type document: [PDF 194 KB]
|
|
Mental Retardation and the 2002 AAMR Definition : a fact sheet
by AAMR
|
|
Mental retardation is not something you have, like blue eyes, or a bad heart. Nor is it something you are, like short, or thin. It is not a medical disorder, nor a mental disorder. Mental retardation is a particular state of functioning ...
|
Type document: [Web]
|
|
Mental Retardation and the Death Penalty: A Guide to State Legislative Issues
by Jim Ellis, 2002
|
|
In this guide, James W. Ellis, lawyer who successfully argued Atkins v. Virginia before the U.S. Supreme Court explains how to implement death penalty legislation in full compliance with constitutional requirements in U.S. states. The guide comes in the wake of the historic Supreme ...
|
Type document: [PDF 68 KB]
|
|
Michigan SAFER Forum Announcement
|
|
Information on a free AAIDD event to be held in Midlands, Michigan in April 2008 on the effect of the environment on the health of children.
|
Type document: pdf
|
|
National Goals Conference
by AAMR
|
|
An overview of the National Goals Conference held in Washington, D.C. from January 6-8, 2003. Top minds in intellectual disabilities gathered to articulate research goals for the field at this conference.
|
Type document: PDF
|
|
National Goals Conference
January 2003, PDF
|
|
An overview of the National Goals Conference held in Washington, DC from January 6-8, 2003. Top minds in intellectual disabilities gathered to articulate research goals for the field at this conference.
|
Type document: PDF
|
|
Newborn Screening in the 21st Century: Current Status and Considerations
A White Paper from the Health Promotion and Prevention Committee of AAMR
by AAMR Health Promotion and Prevention Committee
|
|
The purpose of this white paper is to inform the members of the American Association on Mental Retardation (AAMR) on the current status of newborn screening and the controversies that presently exist.
|
Type document: [PDF 680 KB]
|
|
Parenting Children With Borderline Intellectual Functioning: A Unique Risk Population March 2007, 15 pages, PDF
By Rachel M. Fenning et al.
|
|
An article published in the March 2007 issue of the American Journal on Mental Retardation. A study of 217 mothers and 5-year olds with borderline intellectual functioning revealed that this group of children is uniquely vulnerable to poor parenting.
|
Type document: PDF [116 Kb]
|
|
Parents' Perspectives on Institutions June 2006, 14 pages
By Steven J. Taylor
|
|
This article from the June 2005 issue of the journal Mental Retardation contains an editorial by Steven J. Taylor and parent perspectives for an against institutions.
|
Type document: PDF [35KB]
|
|
People with Intellectual Disabilities Vote for the First Time in Kosovo Press Release from MDRI
Mental Disability Rights International
|
|
A press release issued by Mental Disability Rights International.
|
Type document: PDF
|
|
Person- and Family-Centered Planning : a fact sheet
by AAMR
|
|
This phrase refers to an entire family of approaches to organizing and guiding individual and community change in collaboration with individuals with disabilities, their families, and their friends.
|
Type document: [Web article]
|
|
Pollution, Toxic Chemicals and Mental Retardation: A National Summit 2003
|
|
Overview of a national summit held by AAMR from July 22-24, 2003 to explore linkages between environmental pollutants and the occurence of mental retardation and related disabilities. More than 30 environment and disability experts, and self-advocates participated in the summit held at the historic Wingspread conference center in Racine, Wisconsin. The summit was sponsored by The John Merck Fund and the Johnson Foundation and was supported by the Arc of the United States Research Fund and the Association of University Centers on Disabilities.
|
Type document: PDF
|
|
Positive Behavior Support Training Curriculum
Dennis H. Reid & Marsha Parsons, 2003, PDF, 35 pp.
|
|
An informational package on the Positive Behavior Support Training Curriculum, a new training program published by AAMR for direct support An informational package on the Positive Behavior Support Training Curriculum, a new training program published by AAMR for direct support professionals. A sample module from the PBST Curriculum and frequently asked questions are also included. The PBST Curriculum is available in a Supervisory Edition and a Direct Support Edition and will be published by AAMR in November 2003. The PBST Curriculum has been edited by David Rotholz, Bruce Braswell, and LouAnn Morris.
|
Type document: [PDF 800KB]
|
|
Positive Perceptions Held by Support Staff in Community Mental Retardation Services January 2004, 10 pages, PDF
By Richard Hastings and Sharon Horne
|
|
An article from the January 2004 issue of the American Journal on Mental Retardation on a survey of direct support staff working with persons with mental retardation. Existing research on support staff has been focused on variables associated with stress. However, there has been little attention to the possibility that staff may also experience a number of positive outcomes or perceptions. In this study, 101 support staff working with adults who had mental retardation completed measures of burnout and mental health and a new measure: the Staff Positive Contributions Questionnaire (SPCQ).
|
Type document: PDF
|
|
Possible Gene for Form of Mental Retardation, Brain Development Identified : Press release, June 2002
Natl. Institute of Child Health and Human Development
|
|
Researchers at the National Institute of Child Health and Human Development (NICHD) have come a step closer to identifying one of the causes of previously unexplained mental retardation.
|
Type document: [PDF]
|
|
Preliminary survey results on organ transplantation among people with disabilities Press release, November 2004, 8 pages
|
|
A preliminary survey conducted by The National Work Group on Disability and Transplantation revealed that a large majority of people with disabilities interviewed regarding organ transplantation believed that they were subject to "wholly illegal, explicit and de facto discrimination" regarding organ transplantation availability.
|
Type document: PDF
|
|
Promoting Healthy Aging, Family Support, and Age-Friendly Communities for Persons Aging with Developmental Disabilities : Conference report, November 2001
by AAMR
|
|
A report on the 2001 Invitational Research Symposium on Aging with Developmental Disabilities. The symposium was convened by the Rehabilitation Research and Training Center on Aging with Developmental Disabilities on Nov. 14-15, 2001.
|
Type document: [PDF 1 MB]
|
|
Proposed Montreal Declaration on Intellectual Disability October 2004, 6 pages
|
|
Proposed Montreal Declaration on Intellectual Disability
|
Type document: PDF [120 KB]
|
|
Conference
|
|
Information on the 2008 AAIDD Michigan chapter conference.
|
Type document: PDF
|
|
Quotes on Atkins v. Virginia from the disability community
by AAMR
|
|
AAMR F.Y.I. asked members of the disability community for their reaction on the historic U.S. Supreme Court ruling of June 2002 banning the execution of persons with mental retardation.
|
Type document: [PDF 7 KB]
|
|
Resolution of the AAMR on Evidence-Based Research and Intellectual Disability
by AAMR Board of Directors
|
|
The move toward evidence-based research as specified in the No Child Left Behind legislation is wise, but its overly restrictive definition harms people with intellectual disabilities and those with other severe disabilities.
|
Type document:
|
|
Resources in alternate and complementary therapies and mental retardation June 2004
Edward Hurvitz
|
|
References from paper presented at the “Health Promotion for Persons with Intellectual and Developmental Disabilities: The State of Scientific Evidence” symposium at the 2004 AAMR national conference in Philadelphia, PA.
|
Type document: PDF 160 KB]
|
|
Resources in case management/care coordination and mental retardation June 2004
Ruth Northway
|
|
References from paper presented at the “Health Promotion for Persons with Intellectual and Developmental Disabilities: The State of Scientific Evidence” symposium at the 2004 AAMR national conference in Philadelphia, PA.
|
Type document: PDF 135 KB]
|
|
Resources in feeding/swallowing disorders in children and mental retardation June 2004, PDF
Lefton-Greif
|
|
References from paper presented at the “Health Promotion for Persons with Intellectual and Developmental Disabilities: The State of Scientific Evidence” symposium at the 2004 AAMR national conference in Philadelphia, PA.
|
Type document: PDF 120 KB]
|
|
Resources in health care access and mental retardation June 2004
|
|
References from paper presented at the “Health Promotion for Persons with Intellectual and Developmental Disabilities: The State of Scientific Evidence” symposium at the 2004 AAMR national conference in Philadelphia, PA.
|
Type document: PDF 244 KB]
|
|
Resources in hypertension and mental retardation June 2004
Christopher Draheim
|
|
References from paper presented at the “Health Promotion for Persons with Intellectual and Developmental Disabilities: The State of Scientific Evidence” symposium at the 2004 AAMR national conference in Philadelphia, PA.
|
Type document: PDF [130 KB]
|
|
Resources in mental health and mental retardation June 2004, PDF
Betsy Benson
|
|
References from paper presented at the “Health Promotion for Persons with Intellectual and Developmental Disabilities: The State of Scientific Evidence” symposium at the 2004 AAMR national conference in Philadelphia, PA.
|
Type document: PDF 110 KB]
|
|
Resources in obesity and mental retardation June 2004
Linda Bandini
|
|
References from paper presented at the “Health Promotion for Persons with Intellectual and Developmental Disabilities: The State of Scientific Evidence” symposium at the 2004 AAMR national conference in Philadelphia, PA.
|
Type document: PDF [111 KB]
|
|
Resources in physical activity and mobility and mental retardation June 2004
James H. Rimmer
|
|
References from paper presented at the “Health Promotion for Persons with Intellectual and Developmental Disabilities: The State of Scientific Evidence” symposium at the 2004 AAMR national conference in Philadelphia, PA.
|
Type document: PDF [180 KB]
|
|
Resources in swallowing behaviors in adults with mental retardation June 2004
Joan Sheppard
|
|
References from paper presented at the “Health Promotion for Persons with Intellectual and Developmental Disabilities: The State of Scientific Evidence” symposium at the 2004 AAMR national conference in Philadelphia, PA.
|
Type document: PDF 125 KB]
|
|
Resources in the application of health behavior theory June 2004
Mary C. Cereto
|
|
References from paper presented at the “Health Promotion for Persons with Intellectual and Developmental Disabilities: The State of Scientific Evidence” symposium at the 2004 AAMR national conference in Philadelphia, PA.
|
Type document: PDF [111 KB]
|
|
Resources in violence and mental retardation
June 2004
Richard Sobsey
|
|
References from paper presented at the “Health Promotion for Persons with Intellectual and Developmental Disabilities: The State of Scientific Evidence” symposium at the 2004 AAMR national conference in Philadelphia, PA.
|
Type document: PDF 170 KB]
|
|
Resources in women’s health and mental retardation June 2004
Sheryl White-Scott
|
|
References from paper presented at the “Health Promotion for Persons with Intellectual and Developmental Disabilities: The State of Scientific Evidence” symposium at the 2004 AAMR national conference in Philadelphia, PA.
|
Type document: PDF [130 KB]
|
|
Resources substance abuse/tobacco and mental retardation June 2004
Paul Minihan
|
|
References from paper presented at the “Health Promotion for Persons with Intellectual and Developmental Disabilities: The State of Scientific Evidence” symposium at the 2004 AAMR national conference in Philadelphia, PA.
|
Type document: PDF 122 KB]
|
|
Robert Schalock Talks to AAMR FYI Interview
January 2006, HTML
|
|
Interview with veteran psychologist and teacher, and quality of life expert Robert Schalock published in the January 2006 issue of AAMR F.Y.I., the association newsletter.
|
Type document: WEB
|
|
Self-Advocacy : a fact sheet
Mitchell Levitz, Self-Advocacy Coordinator, Capabilities Unlimited, Cincinnati. OH
|
|
We, as self-advocates, believe that we should be treated with dignity and respect. It is important for us to have the same opportunities as any other person. We feel that we should be given chances to take risks because we know what is important to us.
|
Type document: [Web article]
|
|
Self-Advocacy Movement
by Esther Lee Pederson and Tia Nelis
|
|
Self-advocacy means that individually or in groups (preferably both), people with mental retardation speak or act on behalf of themselves or others on behalf of issues that affect people with disabilities.
|
Type document: [Web article]
|
|
Shaping Our Destiny
by AAMR
|
|
Shaping Our Destiny, the popular self-advocacy series, though out of print, is available in a electronic formats for your use with your constituents.
|
Type document: [PDF] [RTF] [text]
|
|
Shortage of Direct Support Professionals—A Growing Crisis in the Developmental Disabilities Community
by AAMR
|
|
The tough situation that direct support professionals face can be traced to low salary, wages, and compensations. This is evident in both high turnover of these professionals (40%-70% in most state studies) and high rates of vacancies (6% to 14% in most state studies). Further, ...
|
Type document: [PDF 16 KB]
|
|
Shoulder to Shoulder: Celebrating the Important Work of Direct
Support Workers August 2004, 4 pages, PDF
by Peter Leidy
|
|
This article taken from the August 2004 issue of Mental Retardation celebrates the importance of the direct support profession.
|
Type document: [PDF 120 KB]
|
|
Siblings of Persons with Disabilities: Towards a Research Agenda October 2005, pp, PDF
Robert M. Hodapp et al.,
|
|
An article from the October 2005 issue of the journal Mental Retardation
explaining major issues faced in the area of sibling research
|
Type document: PDF [98KB]
|
|
SIS is engaging, valid, and transparent June 2005
AAMR,
|
|
Interview with John Ashbaugh, AAMR State Policy Consultant, on the Supports Intensity Scale.
|
Type document: HTML
|
|
Special Section on Autism and Intellectual Disability
Dr. William E. MacLean, Jr.
|
|
An introduction to a special section on autism in the November 2007 issue of the American Journal on Mental Retardation by editor, Dr. William E. MacLean, Jr.
|
Type document: pdf
|
|
State of the States in Developmental Disabilities 2005 2005, 22 pp., PDF
David L. Braddock et al.,
|
|
An introduction from the 2005 State of the States study and a
4-page statistical snapshot of U.S. developmental disability
funding from 1977-2004
|
Type document: PDF [256KB]
|
|
State of the States in Developmental Disabilities: 2002 Study Summary 2002, PDF, 56 pages
David Braddock, et al.
|
|
A summary of the 7th edition of Disability at the Dawn of the 21st Century and the State of the States, a study that tracks disability spending in the 50 U.S. states and D.C. The 7th edition was published by AAMR in 2002 and includes sections on the history of disability, cross-disability spending, financial profiles of each U.S. state, and a discussion of the forces that have shaped developmental disability services in the U.S.
|
Type document: PDF
|
|
States’ Initial Response to the President’s New Freedom Initiative: Slowest Rates of Deinstitutionalization in 30 Years June 2004, PDF, 4 pages
By K. Charlie Lakin et al
|
|
K. Charlie Lakin States’ Initial Response to the President’s New Freedom Initiative: Slowest Rates of Deinstitutionalization in 30 Years Study published in the June 2004 issue of the journal Mental Retardation showing that the announcement of the 2001 New Freedom Initiative by President Bush has been followed by the smallest reductions in state institution residents with intellectual and developmental disabilities in 30 years, both in terms of numerical reductions and in percentage rates of decline.
|
Type document: PDF
|
|
Steve Eidelman Talks to AAIDD F.Y.I.
January 2007
|
|
After serving for six years as the Executive Director of The Arc of the United States , a 100,000-person membership organization, Steve Eidelman recently accepted a professorship at the University of Delaware ’s College of Human Services , Education and Public Policy. Eidelman is currently charged with setting up a leadership training program at the University for executives in the non-profit and government sectors serving people with disabilities. We caught up with Eidelman, who has led many a change for persons with intellectual disabilities in his various leadership roles with The Arc, the Kennedy Foundation, the Pennsylvania Department of Public Welfare and more.
|
Type document: Web
|
|
Summary Report of Individual and Family Disability Survey NWGDT survey, March 2004, 11 pages, PDF
NWGDT
|
|
Findings from a survey by the National Work Group on Disability and Transplantation (NWGDT) on organ transplantation among persons with disabilities. AAMR participated in this initiative.
|
Type document: PDF [276KB]
|
|
Summit '06 Announcement
Dr. Yves LaChapelle
|
|
International Alliance for Social Inclusion Summit
May 2005, 2 pages
Welcome from Summit Chair, Dr. Yves LaChapelle on an international Summit on intellectual disabilities to be held in Montreal in May 2006.
|
Type document: PDF [50KB]
|
|
Supported Employment : fact sheet
by Alicia A. Cone
|
|
Supported employment is paid, competitive employment for people who have severe disabilities and a demonstrated inability to gain and maintain traditional employment. Supported employment occurs in a variety of normal, integrated business environments.
|
Type document: [Web article]
|
|
Supports Intensity Scale December 2004, 2 pages
by Roger Stancliffe
|
|
Review of the Supports Intensity Scale in the Journal of Practice and Policy in Intellectual Disabilities
|
Type document: PDF [35KB]
|
|
Supports Intensity Scale Administration FAQ February 2005, 3 pages, PDF
By James Thompson et al.,
|
|
Frequently asked questions on the administration of the Supports Intensity Scale compiled by the authors of the Scale.
|
Type document: [PDF 13KB]
|
|
Supports Intensity Scale Information PDF, 33 pages
AAMR Staff
|
|
Comprehensive overview of the new AAMR Supports Intensity Scale (SIS), including uses, frequently asked questions, and adapted portions from the SIS Manual, and more. The SIS is a unique assessment instrument specifically designed to measure the level of supports required by an adult with an intellectual disability in order to lead a normal, independent life in society. The SIS was developed over five years by a team of experts and will be published by AAMR in December 2003.
|
Type document: [PDF 670 KB]
|
|
Thank you letter from the Arc of Florida
January 2005, 2 pages,
|
|
Executive Director of the Arc of Florida thanks AAMR members for their contribution to the hurricane disaster relief aid in 2004.
|
Type document: PDF [122 KB]
|
|
The Standardization of the Supports Intensity Scale: How was it done? March 2004
by AAMR Staff
|
|
An article on how the authors and hundreds of professionals across the country helped standardize the Supports Intensity Scale and ensure that it be a reliable tool for persons with intellectual disabilities.
|
Type document: [PDF 122KB]
|
|
This Is Freedom a white paper
by Tom Nerney (introduction by Cathy Ficker Terrill)
|
|
This paper was presented at the 2000 Annual Meeting is Washington.
|
Type document: [PDF 400KB]
|
|
Ticket to work: Status report
August 2004, 2 pages
|
|
Status of the federal Ticket to Work program and information on how the program can benefit individuals and organizations.
|
Type document: [PDF 90 KB]
|
|
Ticket to work: Status report
August 2004, 2 pages
|
|
Status of the federal Ticket to Work program and information on how the program can benefit individuals and organizations.
|
Type document: [PDF 90 KB]
|
|
Trends and Milestones: Long-Term Service and Support Expenditures for Persons with ID/DD Within Overall Medicaid Program February 2005, 5 pages
Charlie Lakin et al.
|
|
This study published in the February 2005 issue of the journal Mental Retardation traces Medicaid expenditure on long-term supports and services for people with intellectual disabilities in each U.S. state in the Fiscal year 2003 and also contains comparative information on Medicaid spending on areas other than long-term supports and services.
|
Type document: PDF [35 KB]
|
|
Trends and Milestones: US residential support recipients statistics December 2004, 4 pages
by K. Charlie Lakin et al.,
|
|
Article from the December 2004 issue of Mental Retardation talks about how persons with intellectual and/or developmental disabilities receiving residential supports outside the homes of family members for the first time exceeded 400,000 persons, representing a 30.2% increase from a decade earlier.
|
Type document: [PDF 135 KB]
|
|
Usage of the Term Mental Retardation: Language, Image and Public Education
by Stephen R. Schroeder et. al. June 2002
|
|
This 256-page report released by the Kansas University Center for the Study of Family, Neighborhood and Community Policy examines the past and current use of the term "mental retardation" in government programs. The report found that the AAMR definition of mental retardation is ...
|
Type document: [Web article]
|
|
Word from Washington
by Doreen Croser
|
|
An article by AAMR Executive Director Doreen Croser in Mental Retardation
|
Type document: [PDF 135 KB]
|
|
Wyatt v. Stickney - A Long Odyssey Reaches an End January 2004, HTML
By Clarence J. Sundram
|
|
Article on the historic significance of Wyatt v. Stickney. The case, filed in 1970, came to an end 33 years later on December 5, 2003 when Judge Myron Thompson ruled that the state of Alabama was now in compliance with the
settlement agreement. Ricky Wyatt, resident at the Bryce hospital in Alabama alleged in 1970 that the state's mental health facilities were inhumane.
|
Type document: HTML
|
